29 September 2023

Nope, Can’t Do It All

I can’t do it all. I can’t even do most of it. I am trying so hard to figure out how to make that work. 

The Atlantic’s long covid coverage is really good; a key observation for me was that people who are depressed don’t want to do anything, but people with chronic fatigue have a whole long list. It’s not that I’m too depressed to do things. I am sad because I can’t.

My brain doesn’t want to hold on to anything, so I’ve outsourced short-term memory and scheduling to my phone. I keep rearranging the lists to make more of the things happen, but it’s not working. Naaatch.

List of to-do lists: on waking, morning, today, day, evening, bedtime, weekly, tasksSome of the things I’m supposed to get done in the morning
“No social media before breakfast” keeps me from doomscrolling. But writing is the easiest way for me to communicate, and the socials keep me connected with friends and family. Not to mention the news.

Actually seeing friends, on the other hand, is … really hard. I have trouble coming up with words and shaping sentences. Listening is even harder. I’m working so hard to remember what someone is saying that I miss the next thing, or I’ve forgotten some crucial part and I can’t understand what comes next. Group conversations? Forget it. 

When I write, I can go back and edit. I can google* to try to find a word. And man, I have been giving google a workout.

Exercise makes me feel better, as long as I do it carefully, with plenty of rest after every set. This means that a weight workout takes an hour and a half. Before Covid Me alternated arms and legs and finished in 20 minutes. 

Yoga also make me feel better, because that bike crash (the bad one, in 2017) left me with a damaged spine and hip, and pain that makes it hard to get out of bed in the morning. 

Walking Stella is good for me physically, though it tires me, and having her in the house keeps the deep dark black pit a lot farther away.

All the balance exercises, eye exercises, smell training, music, meds, and supplements are supposed to heal my brain. But if I did them all every day, I would have no time left to rest. If I don’t rest, I crash. If I crash, it takes anywhere from days to weeks before I recover. 

Plus, you know, I just got married, and I’d REALLY like to be a half-decent wife and at least clean the kitchen after Catherine makes us fabulous meals, maybe do some laundry, keep the place a little tidy.

So I’m at a loss. 

My newest strategy: A little is better than none. Just one eye and balance exercise every day, instead of all ten or so, mornings and evenings. A set of squats, a couple stretches. 

That might leave me time for half an hour of email triage and 45 minutes of academic writing, which is all I have the energy for anyway. Somehow, I have to find a way to be okay with that, and try to avoid asking the universe if this is going to be the rest of my life.

Any ideas? Do let me know.

__________
* Actually I have switched to Ecosia, which promises not to sell my data and to plant trees every time I use their browser. Because yeah, I AM still a tree-hugger.


13 September 2023

Everything is Harder, the Tuesday Edition

Is it Tuesday? No, I think it’s Wednesday. But I haven’t gotten to the one thing I wanted to do yesterday, and I’m all out of energy again.

I think this scene in the saga starts on Sunday, when we got three inches of water in 20 minutes and spent then next hour running around trying to keep our garage from flooding. 

Is it Wednesday? Yes, it’s Wednesday. And I’m still tired.

This morning I sent a couple of emails to members of a couple of committees I’m on saying I’m probably going to have to resign, and do they want me to resign now or wait until the end of the cycle. Writing is easier than talking, but I’m still worn out by the time I find all the email addresses and send both messages. In addition to the cognitive issues, it’s emotionally hard to send these messages, because the committees do important work, and I want to be able to contribute.

Then I talk through the portal to the provider for one of my medications. Talking is hard to begin with, but talking with dropouts because the wifi signal is weak (my end or hers? I’ll never know) is even harder.

I look at social media. Why does that always turn out to be a mistake? Someone has posted an FYI: CVS has the new covid vax! I want it as soon as possible, because there is anecdotal evidence that getting revaccinated can help with long covid, and I don’t want to get covid again.

I call the local CVS. The recorded message says they have the vaccine in stock. I try to get through to a human, to see if this is really true, but fail, because that’s the way the world is designed right now, because why let a human do a job you can farm out to AI? Shitty AI, if you want my opinion.

I run off to CVS. They don’t have the vaccine. I tell them the recorded message says they do. They know. I try to explain that I don’t have energy to run around like this, because I have very little energy, and misinformation is actually harmful to me. Do they get it? I don’t know if they get it. Talking is hard. Talking when I am already tired.

Then I have to drive to the doctor’s office to pick up the papers for the disability application. At school, Catherine comes out to meet me at the car to take them to HR.

Home. Lunch. Crash.