12 December 2024

The Anthropocene In Two Pie Charts

All the mammals in the world today weigh more than five times as much as ten thousand years ago. 

1greenblogger | ecologue

1greenblogger | visualcapitalist
Cattle alone (416 megatons) weigh more than twice as much as all of the mammals on earth before humans domesticated animals, and releases 12,283 megatons of carbon dioxide-equivalent greenhouse gases during the collective animals’ life span.*

Most of the rest of the world’s livestock animals are, like cattle, ruminants; they and their compartmentalized stomachs belch and excrete methane, whose wiggly molecules are 80 times more powerful at bouncing heat back to earth rather than letting it escape into the atmosphere.

Our pets are small in number, but mighty in impact: cats and dogs contribute almost another megaton of greenhouse gases every year, in large part because they eat a fifth of the world’s meat and fish (and a third of the food from animal sources) in the US — more, per capita, than many humans. 

In short: the livestock we breed is a huge contributor to human impacts on earth.
=================
* Approximately 42 percent of a cow or steer is edible (pdf, p. 11); 416 megatons of cattle yields 173 megatons of meat; beef production is responsible for 71 kg of CO2-eq per kilogram.

06 December 2024

I Hope They Never Find Him

I saw a pulmonologist at the Post-Covid Recovery Clinic at Rutgers in February. When I made my $40 copay, I forgot to tell the hospital to submit the bill under my wife’s policy; I’d lost my own health insurance because I was too sick to work. (Thankfully — I could still be covered.)

The insurance company paid the bill by accident. Or rather, they paid $176, the amount they apparently considered appropriate for a 20-minute telehealth appointment with a medical resident and his supervisor. A few weeks later, they realized their mistake, called the hospital, and asked for their money back. 

The hospital got in touch with me: you owe us $842 dollars. Their price for the appointment, including the copay, was — IS — $882 dollars, if you’re paying the bill without insurance company mediation.

I asked them to rebill under the correct policy. They did. 

— Insurance company: that policy expired.
— Hospital billing office calls me back: your policy expired.
— Me: no, it didn’t. It’s current.
— Billing office: the insurance company says it expired.
— Me: …
— Me: … 
— Me: … what policy identification number was it billed under?
— Billing office gives me the number. It checks out.
— Me. That’s the ID number for the current policy. It’s not expired.
— Billing office: Oh. Well … you need to appeal the denial with the insurance company.

At this point, I should have gotten my butt in gear immediately. But I was already negotiating with the insurance company over several other issues.
  • I’d been trying for months to get reimbursed for appointments with an out-of-network therapist. The therapist made a mistake on the bill, the insurance company rejected it. My job: find out from the insurance company what had to be on the bill; explain it to the therapist; get the bill from her; fill out a new claim form; send it to the insurance company.
  • Another doctor’s office, another $40 copay. And then they ran my credit card for another $127. Why? “the insurance company says you have a deductible.” The doctor was in network. There was no deductible. I had to contact the insurance company and get them to pay the bill — and then get the doctor’s billing office to refund me the money. (I still have to check my bank statements and see if that money ever came back.)
  • Long Covid messed up my vision; things double and blur, my eyes snap in and out of focus, the more tired I am, the worse it gets. The folks at the Long Covid clinic sent me to an occupational therapist who sent me to a neuro-optometrist who did a bunch of tests and prescribed glasses that helped … some … but it cost me $2,000 out of pocket. Insurance company: nah. 
And in the middle of trying to work through all of that, I had some kind of allergic reaction. I still don’t know what triggered it. 

My neck was so puffed up I felt like a toad trying to look big and unappetizing, my ankles and fingers were swollen, and I was short of breath; then I started having chest pain. The GP sent me to the ER, where they checked my blood pressure, listened to my heart, drew blood, looked worried … and repeated the procedure every hour or so. Eventually they found me a bed so they could keep waking me up all night for  more blood draws and more blood pressure readings. 

(I hate that cuff on the blood pressure machine. It’s so tight it makes my fingers tingle, every time.)

Morning. Someone brings breakfast for the lady in the bed next to me; I realize it’s been 24 hours since I called the GP. Could I possibly get some coffee? Nope: no food or drink until they can get me in for a nuclear stress test. Noon rolls around. 3 pm, the resident on the floor says I can have ice chips. 

Reader, I cheated. I let the ice melt and then gulped the water down.

Soon after, an orderly appears to wheelchair me to the test, but it was another two and a half hours before I could eat. 

The upshot: my heart is fine. They have no idea what’s wrong with me, but I’m not going to drop dead of a heart attack, so … I can go home.

Eventually I persuaded my GP to give me antibiotics. (I’ve ridden in this rodeo before.) I started to recover. Slowly. Many, many weeks of slow recovery, punctuated by functional capacity testing that left me even worse off.

Remember that bill I mentioned a few paragraphs upstream? It’s in collection now.

Since February, I’ve seen several other doctor in the same system as the Long Covid clinic. The billing office, instead of crediting those copays toward those visits, applied them to the bill for February. So in their minds, I’ve paid them $440.

Between my copay and the $176 insurance forked over, they called the bill settled for $216.

I’ve already paid $264 more than that. But they sent the bill to collection to scrape another $442 out of me. As much again as I’ve already paid. More than four times what the insurance company will pay.

Oh, and those other copays? The ones that they credited to this bill? Now I’m fielding phone calls about those. 

======================

On average, health insurers deny 17 percent of claims. United Healthcare, the biggest health insurance company in the United States, rejects claims a third of the time.

During the three-year tenure of the CEO who was assassinated two days ago, profits soared from 12 billion to 16 billion. 

I’m not proud of it — but yeah, I’m rooting for the guy who shot that CEO and hoping he manages to disappear forever. 

03 December 2024

If Car Insurance Were Disability Insurance

Insurer [let’s call the company Mutual Farm]: Explain the nature of the car accident, the resulting damage to your car, and a detailed explanation of what makes it so that you cannot drive it in any situation. Arrange for reports from the police and your mechanic to be sent to us directly. Provide contact information for the police officers and anyone else you have consulted about the damage to your car.

The form is twenty-seven pages long (but page nine is only for signatures; pages ten through twenty-six contain fraud warnings for each state; you have to sign again on page twenty-seven to acknowledge the consequences of providing fraudulent information. It is emailed to the Car Owner as a PDF (neither searchable nor editable) to be printed and filled out by hand. There is insufficient space after every question to provide the requested information.

Car Owner submits requested documentation, with seven attached pages providing answers to all of the questions.

Eight weeks later …

MF: We have more questions. We tried to call the police. We only make one phone call, this is our policy. They have not called back.

P: We called the number they gave us three different times. No one ever picks up the phone.

Mechanic: The car is totaled.

MF: We need a complete description of all disabled systems with the OBD-II codes resulting from the scan.

M: The scanner doesn’t give any meaningful data. The engine can technically turn over, but the frame is cracked, the chassis is bent, the oil pan has a hole, and there’s leaking coolant.

MF: What’s the maximum speed you could drive the car in an emergency?

M: That would be a terrible idea. It would be dangerous.

MF: How far could the car be driven?

M: It can’t be driven, it is dangerously broken.

MF: But you just said the engine runs. So the car works.

M: Technically… yes, but the car needs all kinds of repairs to the body before it’s safe to drive it.

MF: We will need the details on that from the body shop.

O: Pays to have car towed to body shop.

Repair shops are governed by state law; body shops are governed by federal law.

MF: You’re going to have to submit a new claim to our body-shop division. Here’s the form you have to fill out.

It’s thirty-two pages long, and is effectively the same as the form you filled out in the first place, but the questions are phrased differently and are posed in different order. You have to fill it out by hand again, attach seven typed pages with the same information as last time, but in a different sequence and referring to different page and question numbers.

MF: *crickets* 

Owner calls MF to find out why no action has been taken. 

MF: We have not received the form.

Owner resubmits. Two more weeks go by.

MF: It went to the repair shop division. We found it and now the body shop division has it.

Auto Body Specialist: We can try to straighten out the bent chassis, but it might get broken in the process; the frame would have to be replaced because the cracks can’t be fixed; and the oil pan has to be replaced. Those alone would cost $12,452 in parts, plus labor and oil. We would have to check the entire engine for damage because it was hot when the oil leaked out, and we would need to inspect the cooling system to figure out where it is leaking and determine what repairs are needed.

Six weeks later (three and a half months after you filed the claim). You’re exhausted and broke from walking to the supermarket and Ubering to work. There is public transit, but the trip (a 35 minute drive) would take four hours on three buses and a train.

I: We can’t make a determination on your claim without a complete estimate.

O: Pays the body shop for seven hours of labor to check the engine and the cooling system.

S: The car is totalled. It will require $17,952 in parts to repair, plus labor.

I: What’s the labor cost? We can’t make a determination without full information.

S: That depends on how long the repairs take.

I: Give us an estimate. The maximum pay-out will be the amount of the estimate minus 10 percent because we can.

Two weeks later …

S: It will take three mechanics seventeen hours to straighten the chassis, one mechanic thirty-seven hours to disassemble the entire car from the frame and two mechanics an additional twelve hours to attach a new frame. Two hours to inspect the cooling system, two or more hours to repair whatever is leaking; ninety minutes to replace the oil pan.* Additional parts and additional labor may be needed, depending on what the detailed inspection reveals.

I: Our independent mechanic read your notes and says you should be able to straighten the chassis in four hours and weld the cracked frame in three. Plus the engine still runs. Is there anything preventing the car owner from turning it on?

S: The engine turns on, but if anyone drives it, they would get hurt when the frame or chassis eventually break completely. 

Seven months after Owner filed the claim.

I: Your car works fine. There is no evidence in your claim to the contrary. We’re unable to provide insurance for this incident. You can appeal this decision within the next 180 days. It is your responsibility to assemble all the documentation and submit it to us in a single package, along with a letter explaining why our denial of your claim was in error.

=======

*I made up these numbers. But I didn’t make up how hard it is to get disability insurance, even though in terms of numbers and costs, fake disability claims are a tiny fraction of all insurance fraud.

graphic: 1greenblogger | data: CAIF

 More than 60 percent of disability claims are denied, even though less than one percent are fraudulent. 

Across the rest of the insurance industry, widespread fraud and cost the industry and the US government $308.6 billion in 2020:

  • 10 percent of property claims are fraudulent
  • 3 to 10 percent of health insurance claims involve fraud (but insurers deny 15 percent of claims)
  • more than a third of people admit they filed false claims for car and home repairs
  • 20 percent of people lie on applications to get cheaper car insurance, and 30 percent to cut home and property insurance
  • 16 percent of workers compensation claims involve fraud (pdf, page 18)
  • 20 percent of life insurance policies are revoked because insurers find lies on applications (pdf, page 33)
For perspective: private insurance companies collect more than $1 trillion in premiums every year. That’s twelve zeroes. $1,000,000,000,000. More than the gross national product of Switzerland.
_________________________
update: 1:05 pm ET, 12/4/24

28 October 2024

On Not Endorsing a Presidential Candidate

Back in September, Jeff Bezos (Mr. Amazon, who also owns the Washington Post), told William Lewis (Post CEO and publisher) not to endorse anyone for president.

Lewis didn’t mention this to the paper’s Opinion editors, but when they sent him their endorsement of Kamala Harris, he killed it.

The Washington Post Guild, which represents journalists and other staff, asked readers to write a letter. So I did.

Dear Mr. Lewis,


I’ve subscribed to the Post for several years, and before that, I read as many of your articles that I could access. Your coverage of US and world news is solid, informative, and important.


I am writing today about Jeff Bezos’s terrible decision to stop the Post from endorsing a candidate for president. 


We are just days away from an election that will have grave consequences if Donald Trump wins. He has made it clear that he intends to weaponize the government against his personal enemies, deport legal and illegal immigrants, end protections for people who are not gender-conforming (many of whom were born that way), make health care more expensive and harder to access, cut abortion and birth control, limit the freedom of the press (ahem!), censor teachers, eliminate support for people who are disabled, increase defense spending, reduce taxes on billionaires while increasing them on lower-income people, and reduce voting rights. And more. For most Americans, life under his agenda would be poor, nasty, brutish, and short, in the words of Thomas Hobbes.


It’s hard to believe, but J. D. Vance is worse. Trump lies, acts on impulse, and rejects science, and is just plain mean, because he is a deeply insecure narcissist. Vance parrots and doubles down on Trump’s spite, malevolence, and vulgarity, knowingly and deliberately, in the pursuit of power. Vance knows he can manipulate Trump to advance his own agenda of making the US a theocracy governed by the ideas of ultra-conservative, patriarchal, white-supremacist Christianity.


Bezos’s interference in the editorial freedom of the people who produce the paper he owns sets a very dangerous precendent. We’ve seen the damage Elon Musk (the only person in the US wealthier than Bezos) has done in politicizing Twitter. Neither man serves in goverment, but their wealth affords them great power in national affairs. This is very worrisome. I hope you will be able to persuade Bezos that this was a terrible decision.


Thank you for your consideration.

The Guild suggests a (less inflammatory) sample letter, but if you’d like to use or adapt any portion of what I wrote, please feel free.

22 September 2024

Visualizing Data, or Making it Muddier?

Back in August, the New York Times published a graphic that visualizes the experiences that Harris, Trump, Vance, and Walz would bring to the White House. 

It bothered me, and I’ve been looking at it again and again, changing the font size, the screen orientation and brightness, and trying to see how the candidates’ education, service, and work experience compare. But it seems impossible: even when I zoom down to tiny, swaths of it run off the edges of the screen.

I started wondering if the goal was not to compare the candidates, but to obfuscate the stark differences among them. So finally I took the data and made a new chart. You can see all of it at the same time, and instead of the Times’ beige, grayish pink, and light blue, I used some bolder colors, and linked public service, military service, and elected office with different shades of blue.

Data New York Times | Visualization 1greenblogger

Harris and Walz’s columns are dominated by state and national elected offices; Trump’s forty years as a businessman stand out in sharp contrast. But the real outlier is Vance, who served as a senator for only eighteen months before getting tapped as VP canditate.

Vance’s four-year stint as a Marine combat correspondent is by far his longest work commitment. From 2013 to 2023, he hopscotched across the country for jobs with seven different employers: clerkships, a job in corporate litigation, and posts at a biotech start-upMithril CapitalRevolution, and Narya, which he co-founded with funding from Peter Thiel. He also started two non-profit organizations, both of which fizzled, and published a mean-spirited memoir.

Vance’s lack of fitness for the presidency is proven by his inability or unwillingness to hold a job for any length of time, his inexperience in leadership, his caustic insults on those with whom he disagrees, and his proven failure in leading non-profit organizations. 

Is it possible that Trump has chosen a VP candidate even more dangerous than himself? Or is Vance proof of how dangerous Trump is?

***

The Times simplifies Walz’s timeline by placing him at Chadron State College from 1982 to 1989. But he left Nebraska in 1984, studied at the University of Houston, worked a factory job building tanning beds in Jonesboro, and went back to Chadron State in 1987, graduating two years later. I include these details for Walz rather than following the Times’ breakdown. 

Walz’s data is a little tricky: his years in the National Guard overlap with bachelor’s and master’s degrees in education, doctoral coursework, and his full-time job as a teacher ( and Gay-Straight Alliance advisor and football coach). I slightly compressed his years teaching and studying to incorporate his military service without lengthening his overall career. 





06 September 2024

Some Metacognition

I started keeping a log of activity and fatigue levels several days ago, and it got me thinking.

The idea was to see if any patterns emerge so maybe I can organize my life a little bettter. Turns out the answer is always the same: stuff happens. Before Long Covid, I’d roll with that Stuff and just keep moving, but now, Stuff Happens means something else doesn’t happen, and probably I still end up so exhausted I’m shaking. Pacing, ha ha.

Well, anyway, I ended up with some insights into how my brain works, and how it … doesn’t.

First two panels of a comic strip. 1/a dog sitting at a table with a cup of coffee, flames all around. 2/“This is fine.”
from “On Fire,” K. C. Greene

For my whole ADHD life, my brain has been like a ping pong ball catapult capable (look! alliteration!) of firing hundreds of rounds a minute. I was pretty good at catching some of the good ideas and making notes about things to think about later while swatting away or dodging everything else.

Turns out cognitive processing speed is much slower in people with Long Covid than in those who never got infected, or did, but recovered. The idea that slowed processing underlies everything wrong with my brain seems completely plausible.

Because I can’t multi-task any more.

Coming up with words — and spelling them! — while operationalizing syntactic rules of a language to form coherent sentences, working simultaneously bottom-up, top-down, front-to-back and back-to front, requires heavy-duty multi-tasking. 

Writing, same deal. It’s just a little less stressful because no one is watching while I struggle. Instead, I spend, well, sometimes hours, googling words and phrases to try to find the word I want. (“Plausible,” for instance.) Sequencing ideas and making sentences coherent, with brevity and maybe even wit, feels like hauling boulders.

Putting leftovers in a bowl and then in the microwave, food I’m not eating back in the fridge, and empty containers in the dishwasher? Multi-tasking. Before Covid Me wouldn’t even have remembered thinking about it; Long Covid Me gets wires crossed. (BCM? LCM? Hmmm.)

Same comic, panels 3 “I’m okay with events that are unfolding currently” and 4 [dog drinks coffee]
“On fire,” continued

The ballista keeps on launching. (“The Money Keeps Rolling In” from Evita ping-pongs to mind; nah, it doesn’t scan.) A news headline pisses me off (that’s its job now?), there’s a fawn in the neighbors’ yard, my mom sends a text (or five), a social media post gets me thinking, one of the dogs wants attention. Occasionally, the actual phone actually rings. So many decisions, so many ping-pongs to forget.

I try to write everything down. Seriously, everything. Yesterday Catherine noticed on her way out the door that the garbage truck hadn’t come yet and asked me to bring the can to the curb. I didn’t write it down, or do it immediately, and I didn’t think about it again until I heard the truck pulling away. Damn.

Last night, I made a note: “calendar the things.” This morning: What things? Uh-oh.

Alternatively, my mind latches onto some idea and won’t let go and … well, it’s interesting, and it’s important, but I need to spend my energy on other things, but I start looking things up and writing things down and looking up words and suddenly it’s two hours later and I have a headache and look, that almost-full cup of coffee is stone cold and I forgot to eat breakfast again. 

Sometimes forgetting seems like the less disruptive dysfunction.

Cooking is harder than laundry, also because thinking, slow thinking. I keep wondering why the physical demands of doing the laundry don’t take more out of me and why cooking hits me so hard, harder than it seems standing with peripheral neuropathy should be.

Slowed cognitive processing. I might follow a recipe or make it up as I go along; either way, I’m chopping and stirring, measuring carefully or eyeballing, trying not to forget anything, and still batting away ping-pong balls.

My big accomplishment the other day: I soaked a cup and a half of brown rice, drained it, measured water, started the stove, brought the pot to a boil, turned it down, cooked the rice until the water was gone, left it for a few more minutes, and then stirred it. Ye gods. If I ever *thought* about cooking rice before, it was 45 years ago. Now: so many steps. So many timers (an unexpected bonus of Apple watch). 

If I forget I’m doing laundry, maybe stuff gets a little wrinkled. I did laundry last weekend and there are still sheets and pillowcases in the living room. I’ll get to them, eventually.

If I forget I’m cooking? Things burn.

Panels 5 “that’s okay, things are going to be okay” and 6 [dog’s eyes fall out]
“On fire” concludes




16 August 2024

JD Vance’s Words are Weapons

I listened, repeatedly, to JD’s convo about “the postmenopausal female,” so you don’t have to.

Image: JD Vance with his habitual sneering scowl. Text: Vance agrees with a podcaster that providing free child care is “the whole purpose of the post-menopausal female” and “a weird unadvertised feature of marrying an Indian woman.”

The most disturbing part of Vance’s exchange with Eric Weinstein, in my mind: neither man displays any interest in what the two women — Usha Vance, Esq., and her mother, Dr. Lakshmi Chilukuri (whom I am naming in part because neither is named in the clip) — wanted or needed. 

The child is also unnamed: Vance calls Ewen, his oldest son, “this baby” and “our son.”

Weinstein says that providing free child care is “the whole purpose of a postmenopausal female.” 

Unlike “woman,” which refers specifically to a human, “female” is also used for animals. Long-horned beetles, t-rexes, dolphins, gorillas, and more. Referring to people of color, and especially women of color, in animal terms has a long history. I’m not surprised — Vance has made, and endorsed, plenty of racist statements — but I’m still dismayed.

Vance clearly says “yes” after the host finishes saying the words. His response comes almost on top of the word “female,” but in plenty of time after “post-menopausal,” which Weinstein fumbles, and which can only refer to a woman, and before Weinstein finishes the sentence with “in theory.” 

Weinstein goes on to say that free child care is “a weird unadvertised feature of marrying an Indian woman.” Vance starts to speak, pauses to interject “yeah,” and continues.

Weinstein uses singular “they” to refer to Provost Chilukuri. Hang on — the ossified right thinks using “they” in place of “she” or, preferably, “he” opens the door to gay and trans rights, which they find pornographic. Ooops.

Vance’s idea that prioritizing earning power over everything else is “hyper-liberalized” and “a consequence of fundamental liberalism” that has “abandon[ed] … Aristotelian virtue politics for a hyper market-oriented way of thinking” is almost risible in its foundational wrong-ness. This describes, quite precisely, the Republican Party line since Reagan. 

The speed and vocal register of Vance’s speech suggest gravitas, especially in contrast to Trump’s jumpy, meandering tirades. But listening over and over again made me see just how repetitive and imprecise Vance’s speech really is. He uses big words and learned phrases to gesture casually at concepts, rather than carefully staking claims and providing evidence to develop arguments. Vance’s words are projectiles, designed — deployed — to destroy, not to build.

06 August 2024

Giants, King Arthur, Olympic Athletes, and Misogynoir

In the (fictional!) History of the Kings of Britain (1136), Geoffrey of Monmouth invents Arthurian legend, drawing on (and vastly embellishing) an earlier collection of Biblical, Greek, and Norse lore and legend combined with geographical and historical information. 

According to Geoffrey, giants from Africa settled the British Isles and built Stonehenge. Later migrants, humans descended from the Greek Aeneas, slaughtered the giants, pitching their leader, Gogmagog, off a cliff to his death.

In naming the giant leader Gogmagog, Geoffrey draws on a long series of narratives about villains. In the Hebrew Bible, Gog is the leader of the armies of Magog, who threaten the Israelites but are vanquished by God (Ezekiel 38, 39). In the Book of Revelation, Gog and Magog become nations that join Satan in attacking the saints, but are consumed by fire from God (Rev. 20.8-9). 

In the Middle Ages, Africa and Asia were sometimes distinguished, and sometimes collapsed into one, but always described in ways that emphasize difference. Medieval maps typically locate Gog and Magog in Asia; the Hereford World Map (1300) names them twice, and identifies them with both “barbarous and filthy” Turks and “the cruellest people among the Scythians.” 

Geoffrey’s identification of Gogmagog as African rather than Asian connects with numerous texts and images that imagine monsters in Africa: the Hereford World Map places Gog and Magog in Asia, and identifies them explicitly in negative terms, it also contains several drawings and descriptions in Africa of monsters and human-animal hybrids.


So when Geoffrey says that Gogmagog is a giant from Africa, he associates him with a long trail of negative, and even Satanic, associations.

Fox Nation has just devoted an entire episode to resurrecting Geoffrey’s fantastic claim. An article promoting the episode says Geoffrey’s makes the first written reference to Stonehenge when he calls it “chorea gigantum” — a circle, or dance, of giants. But Henry of Huntingdon scooped Geoffrey in his Historia Anglorum (1129). Henry writes that no one can figure out how or why the huge stones of  “Stanenges” were set upright.

The demographic that follows Fox is also the one that made recent attacks on female Olympic athletes of color as “trans” go viral. White misogynists have a problem with capable women, and they have a huge problem with capable women of color. It’s why Serena Williams endured years of racist attacks; she was called monstrous and depicted as an animal or a man.


The folks at Fox do nothing by accident. Moya Bailey, a Northwestern University professor, coined the word misogynoir to reference the “unique anti-Black racist misogyny that Black women experience.”  

Highlighting the idea that Stonehenge was built by African giants led by a guy whose name is synonymous with evil makes perfect sense in the context of Fox’s ongoing programming. Network hosts and the people they platform make ad hominem attacks on black women politicians, and misrepresent and lie about their record, rather than addressing policy and substance. Fox articles refer repeatedly and uncritically to a discredited Russian test claiming Imani Khalif is not a woman.

It all connects back to very, very old narratives about monstrosity. 

03 August 2024

Post Exertional Symptom Exacerbation: Don’t Blame the Sick Person


Man, did I need this today. 
Often post-exertional symptom exacerbation (PESE) is not triggered by overactivity. Showering, getting dressed, walking, loud noises, busy environments, or multi-tasking is not overactivity. Saying post-exertional symptom exacerbation is like a Boom-and-Bust cycle is patient blaming and unhelpful.
One of my hardest Long Covid symptoms is fatigue. It’s not like doing a long bike ride or a hike, a triathlon or a road race, or even pulling out all the stops to write an article or a syllabus, and then needing to rest up. 

It’s more like I do a little too much of basic normal activity and then I feel like I’ve been walloped by a giant wave. All I can do is wait out the days — usually four — until I revert to post-covid “normal.”

Yes, absolutely, I have been blaming myself for PESE, more commonly called post-exertional malaise, even if no one else does. The word “malaise” lingers in my head like a bad earworm. It makes me feel like a helpless, fainting stereotype of romance fiction. 

When I was diagnosed with Long Covid, I was referred to a physical therapist, who was very friendly and encouraging, but like most people, didn’t have much experience with Long Covid. She assigned balance and strength exercises, and to avoid over-exertion, told me to track my heart rate carefully: stop immediately if it went over 130, and rest after every set until it went below 90.

My balance improved and I stopped needing the rolling walker. But the brain fog — lousy short-term memory, struggling for words, toiling to come up with whole sentences, difficulty reading academic books and articles, and very wonky vision — was fierce.

The individual exercises didn’t feel hard, especially with so much rest between them. But the thing I didn’t understand about PESE is that it doesn’t emerge until many hours after exertion. Cognitive fatigue hits me immediately and hard, but the fatigue from exercise doesn’t appear until the next day.

Only months later did I stumble across an article about the problems with Graded Exercise Therapy.

Exercise was making me worse.

It finally dawned on me to stop.

The brain fog started to lift. Slowly. Too slowly. More cognitive energy turned out to mean crashing even faster, having to be even more careful. Academic writing, serious reading, a conversation about something I used to teach every year — 45 minutes in, and I’m stuttering, struggling for sentences, freezing up.

After some sedentary weeks, I started back on exercise at one minute. Yeah. ONE MINUTE. I’ve worked back, most days, to a ten-minute walk with the dog (she sniffs many things and makes sure I take lots of breaks) and ten minutes of yoga, mostly seated and prone poses. 

The RECOVER research protocol for the Long Covid fatigue sub-group calls for a baseline of 10 minutes or less, depending on ability, of aerobic activity. It also warns, strongly, that people in the trial should stop exercising if they get PESE. 

Reading that gave me a lightning-bolt shock of relief. 

I’m better at sitting down when I start getting light-headed, or stopping when I’m trying to write an email (or a blog post) and I start to feel the clamp around my head, or not exercising at all if I feel worn out. It’s a work in progress. 

It was so helpful to see the written words that say I’m not pushing myself too hard, but — 

the basic activities of everyday life are too hard for me.

Deep breath.

I have not been able to recover from Long Covid through sheer force of will. 

It’s okay.

01 August 2024

Long Covid: All the Doctors

In a survey of patients’ experience with Long Covid that I completed recently, one question was, describe your experience with medical professionals. 

By the way, without Catherine I’d have neither health insurance nor income, so I wouldn’t be seeing any doctors. Plus I’d be lost without her help making appointments, remembering details, and explaining things to doctors, not to mention grocery shopping and cooking and so much more.

By far the majority of the many medical professionals I’ve seen since I got Covid listened well, were thoughtful and kind, and knew enough about Long Covid (or learned) to understand what I’m going through.

My GP has been an absolute rock through all of this. She’s reading research, listening carefully to me, helping me get to appropriate specialists, and helping me understand some of the possible treatments. After covid, my asthma was no longer controlled by the medication I was taking. It was ameliorated, but I still had fairly substantial difficulty breathing, pretty much all the time. She suggested a different medication.

The insurance company: No. 

The occupational therapist listened when I said my eyes were messed up. She ran a bunch of physical tests, documented the kinds of problems I was experiencing, had me do exercises, and recommended a neuro optometrist. 

The neuro-optometrist prescribed fancy eyeglasses and assigned more and different eye exercises. He tells me my eye muscles are very strong now. Problem is, my brain still can’t correctly join the input from my two eyes. 

The neurologist tested for peripheral neuropathy and balance problems, and prescribed duloxetine. My balance is okay if I’m not too tired, and the neuropathy isn’t gone, but it’s not as bad. better. She reads articles I bring her. She listens carefully when I talk about anecdotal evidence from social media about low-dose naltrexone, nicotine patches, and a raft of other supplements, and tells me what she thinks.

Pulmonologist #1 said my lungs would get better soon, and recommended smell training. Many months later, I thought to look up smell training, and found that there was no evidence it helped with general brain recovery. I asked why she suggested smell training. She said to improve my sense of taste and smell. I told her my sense of smell wasn’t great, but no worse than before covid. “Oh.”

Pulmonologist #2, whom I saw many months later because #1 was out that day, listened to me when I said I still had difficulty breathing despite using a rescue inhaler several times a day, and changed my medication. Insurance company agreed, because specialist. It made a big difference.


Cardiologist said I just needed to get up off the couch and get some exercise. 


The psychiatric nurse practitioner reads research on what medications have given some people relief from cognitive symptoms of long covid. She recommends medications, talks me through alternatives, and works with me on trying to optimize dosage. They’ve knocked some of the sludge out of my brain. I have to be careful though, because thinking faster also tires me out faster.


The talk therapist helped me to find my way back to some level of hope and self-acceptance despite losing my job, my avocation, my energy, my mental acuity … all of this.


The physical therapist gave me exercises for balance and strength. She had me track heart rate, stop after every set, wait for it to go below 90. I had been in excellent condition prior to covid and my muscles were still strong, so the individual exercises seemed easy. My balance got better, except when I’m tired. But eventually, I realized that spending that much time on them, even though the individual activities felt easy, was actually contributing to fatigue. 


Everything I do is tiring. 


Eating, showering, getting dressed, fixing the simplest of meals. Organizing, remembering, and taking medications. Unloading the dishwasher is a heck of a lot of movement. Plus eye exercises smell training, and stretching before bed so I don’t wake up in pain. Plus I was trying to play the piano every day because that’s also supposed to be good for the brain. 


I finally realized it was just all too much.


I stopped smell training, after asking the doctor about it. I stopped worrying about doing the eye exercises all the time. I stopped all of the exercises except short walks and yoga, subscribed to Kindle Unlimited Limited, and spent more time reading mystery novels. I stopped worrying about doing all the exercises all the time and prioritized resting. With time, this is helping me feel very gradually less fatigued, at least some of the time. Sometimes I add some standing yoga poses.


Priority #1 is rest.


How much longer will it be like this? Who knows. I’m at maybe 35% of pre-covid normal. The stats on recovery aren’t great, after a year and a half, but I do keep getting very slightly better, and I keep hoping for a research breakthrough.


Long-term disability insurance company: We are ignoring everything your doctors said. You do not qualify for disability insurance.


The dogs are not medical professionals, but it’s hard to express how much better my life is with them in it. 


31 July 2024

“Burn Down Washington”

Republican vice-presidential nominee J. D. Vance wrote the foreword for a new book by Kevin Roberts, Dawn’s Early Light, scheduled for release in September.

Roberts is president of the Heritage Foundation, the organization behind Project 2025’s Mandate for Leadership, which lays out a vision for a Trump presidency (he’s named more than 300 times) that would eliminate abortion and gay rights and dismantle the Department of Education, just for starters. It also calls for banning pornography, which it equates with any mention of trans gender identity.

Vance says the Heritage Foundation is “the most influential engine of ideas for Republicans from Ronald Reagan to Donald Trump.” He calls for “an offensive conservatism” and quotes Roberts’ call for action: “When the twilight descends and you hear the wolves, you’ve got to circle the wagons and load the muskets.” He’s so enamored of the passage that he repeats it: “We are now all realizing that it is time to circle the wagons and load the muskets.”

I have not gotten my hands on an advance copy of Roberts’ book, so I can only tell you what’s in the promotional materials. And that is an interesting story. A weird story, even. The subtitle of the book, as announced by HarperCollins, is “Taking Back Washington to Save America.”

But when Vance first took to X to laud the “incredible” book’s “bold new vision,” it was subtitled “Burning Down Washington to Save America.

Two days later, Vance deleted that, and posted a new tweet: same text, new title, no match in the cover photo.

Apparently whoever updated HarperCollins’ web page for the book forgot to change the title and description associated with the audiobook. Over at Amazon, the title given for the hardcover and the ebook has “taking,” while the CD version use “burning.” Amazon’s audiobook also gives the title as “burning,” but the description of the book is yet another different version.

Amazon’s description for the hardcover and ebook mirror HarperCollins’ copy for the book. Amazon’s audiobook description has the same sentence structures and paragraph breaks, with some word changes. Both versions claim that “a corrupt and incompetent elite” is brainwashing the nation, and call Roberts’ book “ambitious and provocative.” Then they diverge.


In HarperCollins’ current book description, Roberts’ book “blazes a promising path” for conservative change. On Amazon’s audiobook page, the book “blazes a warpath.” The FBI, Ivy League universities, the Gates Foundation, and the New York Times are “too corrrupt to save.” HarperCollins: “All these need to be dissolved.” Amazon: “Conservatives need to burn down these institutions.”

The copy on the Amazon page for the CD version of the book — and, as of this writing, on HarperCollins’ website for the audiobook — is yet more extreme. I took the screenshot at 11:15 pm on July 30 and am reproducing it as there is no knowing when HarperCollins might change the website.

In this version, Democrats and Republicans alike belong to a “Uniparty” aligned with “globalist elites” that promote centralized government and “endless wars.” (Real Americans, on the other hand, “prioritize winning wars worth fighting.” Which wars are which?) The list of institutions to be “destroyed” includes the Boy Scouts, the Fairfax County School System, and the World Economic Forum.

By “globalist elites,” right-wing conspiracy theorists mean the secret worldwide Jewish cabal that, in their fevered imaginations, controls multinational corporations and international finance. Some of them think the entire cabal consists of George Soros. Some dream up space lasers. The fantasy of malicious and powerful Jews is hundreds of years old. It was peddled by the Protocols of the Elders of Zion, Henry Ford, and Adolf Hitler. White nationalists just keep breathing new life into it.

But where do these different descriptions of the book originate? The publishers of both of my books asked for marketing descriptions of various lengths when preparing the contract. What I wrote for the first book, and my co-author and I, for the second, later appeared on the publishers’ websites and on Amazon.

It is quite likely that the title and language that still linger on HarperCollins’ digital audio page and on Amazon’s page for the audio CD represent Roberts’ original vision for the book, but when Trump tapped Vance as his VP, somebody at HarperCollins got nervous.

In an excerpt from Roberts’ book published online by the Institute on Public and Religious life under the title “Burning down Washington,” Roberts writes that patriarchy is “the natural form of familial relations.”   In the “Foreword” to the Project 2025 Mandate, he calls government “unnatural” (4) and urges the next president to delete references in all federal documents to “gender, gender equality, gender equity … abortion, reproductive health, reproductive rights, and any other term used to deprive Americans of their First Amendment rights” (5).

I think what he is attempting here is to claim that contraception and gender equality restrict his free exercise of religion. But his slash-and-burn method denies other people freedom of religion and freedom of speech. In labeling patriarchy as “natural,” he tries to delegitimize any other perspective. It’s kind of impressive, rhetorically, but still ugly.

These are the ideas that vice-presidential candidate J. D. Vance lauds in his introduction to Roberts’ book, for which he was “thrilled” to write the Foreword, and which he says is “an essential weapon” in the battle that he wants to provoke. Censorship. A sweeping denial of basic civil rights to gay and trans people. Loading his gun to fight. Burning universities, newspapers, charitable foundations, federal offices, and the boy scouts. The boy scouts?

I used to think Trump was the country’s most dangerous politician. I have begun to think that Vance might be more dangerous. 



 

25 July 2024

Biden’s Cognitive State: Stable

I decided I should run numbers for Biden, as I did yesterday for Trump. As in analyzing Trump’s language, I used a speech from the 1980s as a baseline before looking at more recent speeches.

In the absence of complete medical reports, the quality of their speech provides perhaps the best proxy for evaluating both men’s cognitive state. In transcripts of their speeches, sentence complexity drops with age for both. Trump averaged 20 words per sentence in a 1980 interview; Biden averaged 18.7 words per sentence in a presidental campaign speech in 1987. Biden’s baseline grade level is 12.9, Trump’s 10.5.

Jumping ahead several decades, both men’s speeech demonstrates decreased complexity, as measured by sentence length, vocabulary, and other metrics.

But unlike Trump’s, Biden’s speech patterns have remained stable in recent years.

In three randomly chosen speeches from the past five years, Biden’s data are comparable. Average sentence lengths of speeches from 2019, 2021, and 2024 are 13, 16.6, and 14.2, while grade-level calculations come in at 9.5, 9.2, and 9.6.

Right-wing Republicans have asserted since before his presidency that Biden is mentally unfit for the office. In 2021, Lauren Bobert tweeted that cognitive decline made him a security risk. Moderate Republicans, however, found him sharp, well prepared, and cogent in discussions of policy and legislation.

The contrast is clear: unlike Biden’s, the complexity of Trump’s speech continues to drop.


Trump’s confident pugnacity has not changed.

But his speeches, and the thought processes they reveal, indicate that he is increasingly unable to grapple with complicated ideas and delicate negotiations. Even in comparison to 2017, the idea of Trump representing the United States in interactions with global heads of state is … unsettling.

Democrats have focused, appropriately, on Trump’s policy proposals and his extremist rhetoric, rather than descending to personal attacks. 

But the evidence of dwindling cognitive capacity and agility afforded by Trump’s speeches is hard to ignore. Americans across the political spectrum should worry, a lot, about his ability to govern.