Covid Diary

I have been wanting to write about what it’s like with long COVID, but I don’t have much energy to be on the computer. I don’t really know where to start so I guess I’ll start at the beginning.

In January, I was in great shape. I was living in Germany without a car, so grocery shopping, weekend sightseeing, and all my day-to-day activities were done by bike, by train, and/or on foot. 

In February, after returning from Germany, I went to an academic conference that I traveled to by bike, train, and bike, with luggage. I was one of few people at the conference who masked, and the day after I got home, the symptoms began. I was sicker than I’ve ever been, despite numerous bouts of walking pneumonia and bronchitis that exacerbated my underlying asthma.

I recovered from the acute infection after about three weeks, and the weird symptoms began. My vision is wonky, I get short of breath on climbing a flight of stairs or unloading the dishwasher, my feet often feel like they are on fire. My brain is deeply foggy. Working at the computer wears me out, whether it’s writing email, watching videos, or trying to have a zoom call. Reading? Sewing? My vision goes even wonkier.

The GP said take this new medication. The insurance company said “no.” 

The pulmonologist said “rest.” For six months to a year. 

The occupational therapist sent me to a fancy eye doctor who prescribed fancy expensive glasses that I am hoping to pick up soon. Maybe they will help with the fatigue, with writing and reading.

The physical therapist sent me to a cardiologist who prescribed a bunch of tests and said, get some exercise. The insurance company said, in a recorded message, “no” to I think one of the tests. Maybe more. Like I said, brain fog. I didn’t know the message was going to be recorded and I didn’t write anything down and it was not repeated and I hung up and wondered what just hit me.

I am still waiting to see the neurologist. I was “lucky” to get an appointment in the middle of June, after my GP referred me in March.

And that’s it for today. I am worn out. Maybe more another day.